This Carers Rights Day, November 21, Carers First shares how they’ve empowered carers to understand their rights, in line with this year’s theme: ‘Recognising Your Rights.’
Caroline’s Story: Finding Balance as a Working Carer
Caroline (name changed for privacy) lives in Lincolnshire and is the full-time carer for her 26-year-old son, David (name also changed), who suffered a severe brain injury following an infection when he was seven.
Due to David’s deteriorating health, Caroline had to leave her job at a local school to care for him full-time.
“Losing my job was like losing my identity. I felt like everything had been ripped away. I didn’t want anyone to know how much I needed time off. I was terrified of losing another job. I just thought I was a parent, not someone who needed extra support,” she said.
After being introduced to Carers First, Caroline learned about her rights as a working carer. With their guidance, she applied for a Carers Passport, a tool that helps carers formalize their role at work and access workplace adjustments, including flexible working hours.
In November, Caroline had her first full day to spend with David in years.
“It felt like a gift. We went for walks, talked about what was on his mind. I was finally able to just be with him, without the pressure of work or chores hanging over me. It’s not perfect, but it’s progress. I finally feel like I’m not just surviving — I’m living again.”
Amy’s Story: Balancing Work and Caring Responsibilities
Amy, 47, from South Lincolnshire, is the primary carer for her husband, Ron, 61, who has early-onset dementia and peripheral arterial disease. While managing his daily care needs, she also works full-time, mostly from home.
Earlier this year, Amy’s social worker referred her to Carers First after she struggled to balance her job with caregiving. As her employer increased office demands, Amy felt overwhelmed.
With the support of Carers First, Amy learned about her right to request flexible working. They also guided her in creating a Carers Passport, which helped her navigate discussions with her employer.
“The support I’ve received has been incredible. My manager asked for proof that I’m a carer, especially as I was voicing concerns about being asked to come in more often. Having a Carers Passport made a positive difference. It’s such a relief to know I have support and recognition from my employer.”
Recognising and Supporting Carers’ Rights
Amy and Caroline’s experiences highlight the challenges carers face and the transformative power of understanding their rights.
On Carers Rights Day, we celebrate the resilience of carers like Amy and Caroline, who balance work and caregiving every day.
How Carers First Can Help
Carers First offers face-to-face support across nine regions and provides online support for carers nationwide.
- Donate to support more carers: [Insert donation link]
- Need help? Visit www.carersfirst.org.uk or call their helpline at 0300 303 1555.